Your experience can help uplift Myasthenia Gravis research
A Community for You
Welcome to the AXIS AutoImmune Neurology Registry – a place where patients, families, and researchers come together to learn, share, and build a brighter future for everyone affected by autoimmune diseases of the nervous system, including Myasthenia Gravis.
Every story matters.
By joining, you’re helping doctors and scientists understand these rare conditions better, so treatments and care can keep improving
Led by Experts, Made for Patients
When you join AXIS, you’re taking part in a research effort supported by Yale Universityand guided by a scientific committee of leading autoimmune neurology experts. This helps ensure the research is thoughtful, ethical, and focused on what matters to patients.
Who can join right now?
AXIS is currently enrolling people who have been formally diagnosed with Myasthenia Gravis.To make sure the Registry data is accurate and valuable, participants will be asked to confirm their diagnosis during enrollment.
We value your time
We value the time and effort you put into sharing your experience. Participation includes short questionnaires that take about 5–10 minutes to complete every month, making it easy to fit into your routine. This is a long-term study, and if you agree to share your medical records with researchers in this study you may be eligible for compensation, including:
Up to $50 for completing the enrolment process
$10 for each Monthly Follow-up Survey
Monthly raffle entry when you complete a survey—win prizes like an Tablet, Smart Watch, or gift card!*
For full details about participation, eligibility, and incentives, please visit our FAQ.
Join Axis!
Sign up from your computer
Click the link below to access the web app from your desktop computer or laptop.
Join from your Mobile Phone
Scan (or tap) the QR code to download the app from the App Store or Google Play.
Once Downloaded if you see the AXIS logo you are in and can proceed to Sign-up. If you don’t see the logo, insert the Study Code:5TGKGN
How AXIS Works
AXIS is the registry. Health Storylines is the platform that brings it to you.
The AXIS Registry is where people living with Myasthenia Gravis can share their experiences through monthly surveys and contribute to a better understanding of MG. After completing enrollment, participants may receive compensation for eligible monthly surveys.
Health Storylines is the health-tracking platform that hosts the AXIS Registry. You can also use it to keep track of your everyday health, including symptoms, medications, appointments, and more.
The Registry is for individuals who have been formally diagnosed with myasthenia gravis.
To help ensure the accuracy and value of the Registry, participants will be asked to confirm their diagnosis.
Contact Us
Do you have any questions or ready to get started?
Fill out the contact form or send us an email and we’ll be in touch shortly. We’re here to help.
If you disclose data to us via our contact form, this information will be stored on our servers for the purpose of data backup. Your information will be used exclusively for processing your request. Your personal information will be treated in strict confidence and will not be disclosed to third parties.
Email
support@axispatientregistry.com
Phone (US)
+1 (765) 632-2517